Thursday, September 07, 2023

She's Got Marty Feldman Eyes

 

Is this thing still on? Yeah, so, I've been meaning to write forever, but I haven't been making time. Partly because I have too many things I try to do, and partly because my Grave's Disease meds make me fat and lethargic. I keep trying to fight the lethargy, with limited results. I guess I'll just keep on trying.

So many things can happen in five or six months, right? The good thing for all of you, is that I have so much to write about that I won't have time to into the minutiae of what I had to eat for every meal of the day (I save that shit for Facebook, apparently), or how many bowel movements I had, or how often I stepped in cat puke a week (quick answer? probably about equal to my number of bowel movements). I will, as usual, go into too much detail about health issues and where I'm at with menopause (quick answer? Who the hell knows). Let's get down to it, shall we?

1.) Health Issues: Since my doctor cut my Grave's Disease meds in half, I am not nearly as tired and woebegone as I was on the bigger dose, but I am still both of those things. Also, even though I'm not actively gaining weight any more, I am not actively losing what I have previously gained by taking twice my dose of meds no matter how much I exercise or how little I eat. Of course, wah! wah! wah! It's all so much better than dying of a stroke or heart attack. So, I guess I'll take it?

Sexy, huh?

 

The other thing is that I got my eyes checked to see if I had Thyroid Eye Disease, which can cause blindness, and keep you from seeing colors, and make your eyes all bulgy like Marty Feldman. When I went to the appointment, I joked with the resident that maybe I wouldn't mind so much to have it if it took away my squinty little eyes. He seemed a little horrified, because he either didn't get my joke, or didn't think I was as funny as I always think I am (most likely). Anyway, after about three hours of testing, it turns out I do have Thyroid Eye Disease, or TED. The doctor I spoke with about it said the best thing to do for it was to keep my Grave's Disease under control by taking my meds, limit my stress (Hmmmm. Not my strong suit), and to get Selenium. She was very specific about how and what to take - exactly three Brazil nuts a day. Oh, how I wish Cashews had tons of Selenium instead. I am hit and miss with remembering to eat those three nuts. Let's hope I don't blind myself with my own lame-assedness.

Because I am stupidly optimistic, I like to look at any positives I can find about this annoying disease. So, here's what I have so far: In looking for ways to control my Grave's Disease, I stopped drinking milk and eating dairy yogurt (for the most part) because dairy products are high in iodine, and it's made my allergies a lot more tolerable. The joint pain seemingly caused by my meds have made me finally get off my ass and see a doctor about how to fix it. The doctor then sent me to a physical therapist, who made me custom inserts for my shoes, and gave me some exercises to do. The joint pain is still there, but I'm hoping it gets better. The biggest positive is that I have had people who had thyroid disease reach out to me to tell me that reading the things I've written have helped them. Sometimes it's nice to know you're not the only one going through and/or being frustrated by something. I'm glad I can do that for even a few people.


 2.) Playing Bikes: I am riding my bike way more than I was last time I wrote in here. I'm still horribly out of shape, so going up hills is even harder than ever, and I am trying to do longer and longer rides. On RAGBRAI week I rode three whole days in a row, and did my longest bike ride this year, 86.5 miles in a day. A VERY hot, and miserable day. Bike riding is fun!

3.) The Garden: Gardening during a drought has been a little crazy. The tomatoes, and raspberries, and Zinnia's are happy. The broccoli, zucchini, and Mexican Torch Sunflowers? Not so much. 

4.) My Husband: I know I do gush on and on about John, but if you've had even half as many shitty relationships as I've had, you would appreciate the hell out of a great partner too. He is patient and kind and generous and helps to remind me not to be disappointed when my body doesn't respond the same way it did before I had Grave's Disease. Some days I come home from work all lethargic from my meds, but also a bit anxious because of my disease. I will have planned to ride, but it feels overwhelming, and when I whine to John about how lame I feel, he'll say something like, "Just do what you can. How about watching some "Stranger Things?" And you know what? Watching "Stranger Things" is always the right way to deal with feeling crappy. So, what I'm saying, is that John is an empathetic genius and I'm pretty damn lucky he is in love with me.

5.) My Daughters: I am also incredibly lucky to have two amazing, strong-willed daughters. As they move out of their twenties, I get to watch them find themselves. They have both been through a lot, and they're still sorting through who they are and what they want now that they're adults, but neither of them are afraid of hard work, and they are both doing that work. They have also been very supportive of me and my issues. I'm just happy that I actually choose the family I was given.

Okay...that's probably all more than enough for one blog post. Hopefully, I will keep on it and I won't have to spend so much time summarizing my life on here, but you know how I am...

2 comments:

NATALIE R said...

Tara, you keep being you! You are an amazing human and I truly wish we lived closer. Hugs to you as you process through.

Churls said...

Thank you so much, Natalie. I wish we lived closer too.